"It was a chain-reaction:" How blood donation led a local health care advocate to support Sickle Cell warriors in need

From a young age, Jasmine Westbrook understood the importance of blood donation.

“The first time I was introduced to donating blood I was in high school. We had a drive, but you know, when you’re in high school, you don’t have the best diet – especially breakfast. You’re not eating right, so a majority of us, myself included, couldn’t donate,” she laughed. “I initially donated blood about 10 years ago in college during a drive and I was a little bit more educated on having a balanced meal the night before and before the donation.”

She credits her mother, a longtime blood donor herself, for inspiring her to set a routine early on in life.

“We just want to do good,” Westbook explains. “In the last five years, I’ve started donating regularly once I really understood what my blood donation could do. How it could really impact somebody. I was doing it because I knew it would help people.”

But it was after Westbrook attended a panel discussion on Sickle Cell Disease co-hosted by Sickle Cell Warriors of Buffalo, the American Red Cross of Western New York and community partners that she began to look at her role as a blood donor in a new light.

“I attended and I really learned about the CEK-negative component.”

There are an estimated 100,000 people suffering from the effects of Sickle Cell disease in the United States. From pain to organ failure, patients with Sickle Cell often face serious medical complications due to an inherited gene that creates sickle-shaped red blood cells, causing difficulty in navigating through small blood vessels. As a result, blood transfusions are vital to treatment, with some patients requiring approximately 100 transfusions per year.

Transfusions rely heavily on donors who carry CEK-negative antigens, which provides the best blood match and helps alleviate symptoms for those fighting Sickle Cell. Blood donors who are African American are nearly three times more likely to be CEK-negative than donors of a different race or ethnicity.

To help increase the availability of close-matching blood for Sickle Cell patients, the American Red Cross launched the Sickle Cell Initiative in 2021. Since the launch, more than 125,000 first-time African American donors have rolled up a sleeve to help strengthen and diversify the blood supply. And as part of that initiative, more than 260,000 Sickle Cell trait screenings have been provided to donors.

“I left that event and wanted to know if I had that protein, because people talk about blood types, but they don’t always talk about that,” Westbrook says. “That day, I donated double reds, they tested it, and I got the card was told I was CEK-negative.”

Since then, Westbrook’s personal and professional motivations to encourage others to roll up a sleeve have taken on new meaning. A health care advocate with the Healthcare Education Project, Westbrook works directly with patients and the public through community events and uses the opportunity to inspire and educate others to donate not only for themselves but patients – especially Sickle Cell Warriors in need.

“I feel like it’s my duty because I have a protein in my blood that allows me to really help people and specifically in the African American community. A lot of the work that I do is coming back to my cultural group and knowing that I have the protein in my blood – that will really help people with sickle cell, which is an illness that is high in our community. Of course, I’ll share my blood. A big part of my role is advocacy on a statewide level for access to health care. I’m able to share information with people to help keep our community more educated, like with Sickle Cell. When the conversation comes up now, I’m equipped with information to say, ‘Why don’t you donate and see if you have that protein?’ I’m helping to pass the word around so we can have a healthier community. So, it’s personal for me and its business.”

You can learn more and help give to patients in need by making an appointment to donate at RedCrossBlood.org, by calling 1-800 RED CROSS (1-800-733-2767) or by downloading the free Red Cross Blood Donor app to your smartphone.

Meg Rossman, Regional Communications Manager, American Red Cross of Western New York

"We've been together ever since": Red Crossers find love & laughter at local blood drive

When Tony Addotta first signed on to volunteer with the American Red Cross of Western New York, the retired truck driver was looking for something new to utilize his talents. Little did he know that his new volunteer role with the Red Cross would also lead him to the love of his life.

“It was my first volunteer position. Channel 17 had a volunteer fair. I went downtown and there were a lot of different tables. The Red Cross had a sign in table, and I guess five people signed up and I was the only one who showed up the next Monday. Shawn O’Hargan [Regional Market Manager, American Red Cross Blood Services] had her pastries and stuff like that, so I started driving with blood services and you know, it was nice. I was retired, so I was just playing golf and taking naps.”

Seated next to him on a sunny afternoon, Nancy Despard laughed. “Oh, he’s good at naps!”

That was nearly 17 years ago. Roughly one year after Tony signed on as a volunteer, Nancy found herself in a similar position.

“I actually saw it in the paper to volunteer,” she explains. “My parents were actually blood donor ambassadors here and then they moved to Myrtle Beach and did it down there, too. I thought, ‘Oh Mom and Dad did this, so I can do it, too.’  Then we met at a blood drive.”

“Oh, did we?” Tony laughs.

“You came in – he was a usurper. He came in and was supposed to be getting people to sign up to donate double reds and I’m like, why is this guy from Buffalo honing in on our drive? So, he didn’t talk much to me,” Nancy recalls.

With a sly smile, Tony is quick to explain, “I was out in the hallway, recruiting double reds – that was my job!”

Although it would be months before the pair would ultimately meet again, Nancy shares that she knew early on there were sparks.

“I love joking around and stuff and I thought, why couldn’t I have met him before?”

Their shared love of helping others would bring them together again when Tony, ever the gentleman, volunteered to drive a group of Red Crossers from Buffalo to the Greater Rochester chapter to tour the West Henrietta Blood, Platelet and Plasma Donation and Processing Center

“Well, Tony drove the van. And he makes anybody in the backseat wear a seatbelt.”

Tony interrupts with a big laugh, “Well, yeah! Wherever they’re sitting!”

“So, he climbs over the backseat, because I’m behind the driver’s side, to hook up my seatbelt for me.””

“You looked like you needed help!”

“So, we went down to West Henrietta and had lunch, and the group stopped at a rest stop and when I came out of the restroom, and he was waiting out there for me. So, he’s walking me out and he said, that he was membership chairman for the American Legion post and hands me his card for that and says, ‘Here, give me a call.’ Now, I’m like, not young – I don’t if know he’s hitting on me. I call my sister, and asked her, do you think he needs a volunteer there or something? That’s the only thing I could think of that he would need me to call him. Finally, after a few days, I call him and we’re talking and that and I realize, I guess he doesn’t want a volunteer! That was October 2010. We’ve been together ever since.”

In that time, the pair have continued to volunteer with the Red Cross. Nancy now works to schedule volunteers for blood drives across four counties within the Buffalo area. Tony serves as a transportation specialist for biomedical services in the Buffalo district and was one of several volunteers who drove through an historic and deadly blizzard to ensure that blood products were delivered to area hospitals in December, 2022.

“We were just driving,” he explains. “That was [Transportation Specialist] Rachel Elzufon Couch’s leadership. We may have won an award, but it was her leadership that made it happen. We were just doing our job.”

“The first time I was ever driving with him, I looked at all the blood in the back and I realize, we’re saving people’s lives by doing this,” Nancy remarks. “It was really – it really meant something to me that what we’re doing is really saving people’s lives.”

While his fellow volunteers received the Blood Services Hero award at the 2023 Western New York Real Heroes luncheon, Tony accepted the award while awaiting open heart surgery at a local hospital with Nancy at his side. Just a few days prior to the event, doctors discovered a large aneurysm in his aortic valve.

“I was a walk-in. They couldn’t believe I was a walk-in,” he explains. “I only went to the hospital because I couldn’t sleep for two days.”

Nancy immediately takes on a more serious tone: “He is a miracle walking. The doctor said they’d never seen one that big before ever. It could have broken like that.”

But their playful banter quickly returns.

“Well then It’s a good thing you don’t hit me!”

The couple shares that Tony’s surgery and recovery helped put things into perspective, both in their personal lives and their roles at the Red Cross.

“I’m on a crusade,” Tony says. “I stood up one day and said to the other drivers that I know that sometimes you think this might be nothing, but all you guys helped me to survive because the blood had to be there, and it all takes all the people. People can take it for granted and I thanked them all, because as you know, it’s the blood donated today that helps tomorrow. I’m one of those people that you’re donating for. It takes a village.”

That’s the message the couple shares with fellow and prospective volunteers – and even blood donors alike.

“Sometimes at the end of my drives, I will stop into a blood drive and tell a blood donor, ‘I just drove hundreds of miles to say thank you!’ And then it gets everybody laughing. It’s very rewarding. It becomes a place where you go in now and you get to see your friends. I still have my naps!”

Nancy agrees, “I tell volunteers, this is the easiest way that you can save somebody’s life.”

As for their secret to making it work as a couple, Tony says it’s simple:

“You have to have a sense of humor. It keeps things in perspective, I think. She has a good soul and a soft heart.”

Meg Rossman, Regional Communications Manager, American Red Cross of Western New York

On a path to saving lives: 16-year-old marks third blood donation

At 16 years old, Jupiter Brady-McCullough is at an exciting crossroads in life. A junior in high school, the Ithaca resident is just beginning to consider college and different career paths, including an EMT certification – and this past December, they embarked on an unexpected journey when a Red Cross blood drive was held at their school.

“I was excited because I’m kind of getting to the age where you can do some things that you couldn’t really do before. So, when I learned that you could donate at 16, I thought, ‘Oh, cool! Another thing to try!’ I definitely knew it would be useful to someone and it was my hope that it would make someone feel better.”

Despite some first-time jitters, Brady-McCullough deemed the appointment a success, thanks to a “pretty decent” snack spread and the fact that they may or may not have missed a less than favorite class (shhh), but it was the information they received after the appointment that started Brady-McCullough on a new path to help patients in need.  

“I got super interested in blood donations. I started researching it a bunch, and then I found out my blood type and I was like, ‘Oh this is so interesting!’ Then I sort of started ranting to my friend group about it and got them to start donating, too.”

Brady-McCullough also made a point to download the Red Cross Blood Donor app which allows users to schedule and manage appointments, track your blood journey and save time at appointments with RapidPass. By using the app, they were able to learn their blood type which set them up on the path for their next blood donation this past winter.

“I read somewhere that I read A-positive is a good platelet donation type, but there was nowhere near me that has that technology stuff and I wanted to see how it was. So, I asked my mom if we were going to Costco soon, because there was a Red Cross place in Rochester to donate platelets. My mom told me when we were going to Costco and I looked at the schedule, made an appointment and I went there and I watched a movie while my family shopped, and that was an even better experience.”

Every two seconds, someone in the United States is in need of lifesaving blood or platelets and volunteer donors like Brady-McCullough are the only source. In fact, approximately 29,000 units of red blood cells are needed every day in the U.S., and nearly 5,000 units of platelets, that must be used within five days of a donation, are needed daily. Platelets form the clotting component in blood and are vital to the treatment of patients battling cancer, chronic diseases and traumatic injuries.

With such a finite shelf life, the need for blood is constant but supply can’t always meet demand because only about 3% of age-eligible people roll up a sleeve to donate yearly. Heading into the summer season, the American Red Cross critically needs blood as severe weather and record-breaking travel are expected to continue to impact the ability of donors to give.  

On June 4, Brady-McCullough made their third appointment to donate blood alongside friend Ava, with no plans to stop any time soon.

“I like the feeling of it, to be honest. Spending my time doing something that would positively impact someone’s life. It gave me a little surge of happiness. Something about blood donation is like, ‘Here I am, and I am helping someone else in their life.’ I think it is one of the better decisions I’ve made in my life and I think it’s an easy enough thing to fit into your schedule. And if I hear of another Costco trip, I’ll be like, ‘Hey, let’s go!’”

You can help patients in need this summer by making blood donation a priority, just like Jupiter, by visiting RedCrossBlood.org, calling 1-800 RED CROSS, or using the free Red Cross Blood Donor app.

Written by: Meg Rossman, Regional Communications Manager, American Red Cross of WNY

Memorial Day: Remember the Fallen

Memorial Day is an emotional day for those of us who have lost loved ones who paid the ultimate sacrifice in service to our country. Military members, whether enlisted by draft or by volunteering, have served with the concept of unlimited liability. They were subjected to being lawfully ordered into harm’s way. Unfortunately, not all who died in service to our country are remembered. World War I counted over 116,000 American fatalities in combat, disease, or accident.

As a retired military member, I serve the veteran community. In this work, I have found a way to honor those who gave the ultimate sacrifice yet whose memory has not been honored. As the Chair of the Western New York chapter, American Red Cross Service to Armed Forces (SAF) Committee, I help to organize events to honor them.

A special section in Lewiston’s Riverdale Cemetery, purchased by the former Niagara Falls chapter, American Red Cross, honors those who died in World War I but had no family to claim them. For years, the memory of those buried in this section was neglected. Now, the WNY Chapter of the American Red Cross annually honors the sacrifice of these 82 veterans. Volunteers plant flowers on their graves during the Memorial Day weekend. These gravesites surround an American Red Cross monument erected by the former Chapter to honor these unclaimed veterans. The monument’s inscription reads:

 

In memory of those who gave their lives and of those who served and fought in the great world’s war, 1914-1918. That democracy might live and peace and justice reign.

In December of each year, Red Cross volunteers conduct Wreaths Across America, where all services are honored, harkening back to the collective experience in World War I. We encourage every volunteer who places a wreath on a veteran's grave to say that veteran’s name aloud and take a moment to thank them for their service to our country. It's a small act that goes a long way toward keeping the memory of our veterans alive, and I encourage you to say the name of someone who paid the ultimate sacrifice. If you do not know of anyone, consider some of those buried at the Riverdale Cemetery:

Privates Earl O. Jarden (Lost Battalion of the 308^th Infantry Regiment), Vincent Cirrito, Roy B. Secord, Stephen Wojtucki, (all served in the 77^th Infantry Division known as the “Statute of Liberty Division” and the 78^th Infantry Division, nicknamed the Lighting Division, comprised mainly of soldiers from New York State), Sergeant Richard Arvaniti (22^nd Infantry Regiment served as part of the 3rd Division of the American Expeditionary Forces (AEF) in France including the Meuse-Argonne offensive – the largest offensive operation in US history involving over 1 million soldiers).

Remember, we do not do this to decorate graves.

Each evening at the Menin battlefield gate at Ypres, Belgium, a special ceremony honors the fallen who rest there. Words from the fourth verse of Laurence Binyon’s poem For the Fallen are read:

 

“They shall grow not old, as we that are left grow old:
Age shall not weary them, nor the years condemn.
At the going down of the sun and in the morning,
We will remember them.”

 

As you enjoy the time spent with family and friends, please reflect on the freedoms we share and remember the fallen, particularly those who have no one to remember them.

 

Written by: Robert E. Pecoraro. Robert retired as a Colonel from the United States Air Force in 2012 and moved home to WNY with his wife, Laura. He currently serves as Chair of the Service to the Armed Forces (SAF) committee for the WNY chapter of the American Red Cross of Western New York.