A Mother's Mission, A Son's Strength: Fighting for Sickle Cell Warriors

As Executive Director of Sickle Cell Warriors of Buffalo, Melaney Agahiu’s mission is to educate and advocate for Sickle Cell Warriors across the community.

“Unfortunately, a lot of people turn a blind eye when they, unless it hits home. It’s easy to just ignore. I challenge people to learn about sickle cell and how it impacts people, and how they can help.”

For Melaney, that challenge is especially personal. Her son, 18-year-old Drew Agahiu, is a warrior himself.

“Initially, I was coming into Sickle Cell Warriors of Buffalo for support. Then it turned into a lot of volunteering. Sometimes it’s just being able to talk to someone who just gets it.”

Sickle cell disease is the most common genetic blood disorder in the United States, and it’s estimated that more than 100,000 people have sickle cell nationwide. Sickle cell disease distorts soft, round blood cells, turning them hard and crescent-shaped, which can lead to severe pain, tissue and organ failure, anemia, infections and strokes.

Throughout their journey, Drew and Melaney have been fortunate to be surrounded by a large community of supporters each making an impact, from family, friends, their Sickle Cell Warriors of Buffalo family – and a community of strangers nationwide.

“It means a lot to me,” Drew explained. “I feel like blood donors give a lot of support to me. Actually, they give 100 percent support to me. It’s hard to put into words.”

For warriors like Drew, regular blood and platelet transfusions are critical to managing extreme pain and life-threatening complications caused by sickle cell. After receiving multiple transfusions over the course of his treatment, Drew began receiving monthly apheresis transfusions two years ago.

“If it weren’t for people donating blood, Drew would probably be in a much worse condition,” Melaney said. “Before that, it was 6 or 7 hospital admissions a year. You know, it would be maybe 5 days to, you know, 6 to 8 weeks that he would be in the hospital, and that would include a handful of ICU admissions. Now, he probably has one hospital admission a year, maybe. It’s a blessing. He still obviously experiences pain and has crises, but oftentimes we can manage it at home, and I know for a fact that’s because of the transfusions.”

Noting her son’s extra energy as a result, Drew was quick to agree with a smile. 

“Now that we’ve been doing it once a month, that’s been a big change for me and it’s helping with my pain.”

That’s why Melaney says her work challenging the public to educate themselves on sickle cell is doubly important.  

Transfusions rely heavily on donors who carry CEK-negative antigens, which provides the best blood match and helps alleviate symptoms for those fighting sickle cell. Blood donors who are African American are nearly three times more likely to be CEK-negative than donors of a different race or ethnicity.

“Why is it important for people to donate blood?” Melaney asked. “It’s because it saved his life and other Sickle Cell Warriors. I can speak firsthand. I see the night and day.”

Drew agreed, “Don’t be afraid. You’re the biggest help to sickle cell warriors. Your support helps me to be there to hang out with friends or enjoy special moments.”

As our nation observes Juneteenth and World Sickle Cell Day on Friday, June 19, the Red Cross is honoring sickle cell warriors like Drew, the light they carry and the community of blood donors who surround them.

Every donation helps patients continue to thrive. The Red Cross encourages eligible donors of all backgrounds to make an appointment to give blood and help ensure patients with sickle cell disease have access to the lifesaving transfusions they need.

Those who come to give blood June 1-28, 2026, will receive a $15 e-gift card to a merchant of choice and be automatically entered for a chance to win one of two $7,500 gift cards.

Make an appointment to donate by visiting RedCrossBlood.org, calling 1-800-RED CROSS or using the Red Cross Blood Donor App.

Written by: Meg Rossman, American Red Cross of WNY

Turning compassion into action to help fellow Sickle Cell Warriors

Passion, Passion, Passion!

Jason Moore exudes passion as he talks about Sickle Cell Warriors of Buffalo.

The vice president of the non-profit explains that “Sickle Cell Disease is the most commonly inherited disease in the world.”

Red blood cells carry oxygen throughout the body; in Sickle Cell Disease, the red blood cells are mutated into a crescent or sickle-shaped form, and therefore cannot carry enough oxygen to the tissues and organs of the body – potentially leading to anemia, and tissue and organ damage. This often requires regular blood transfusions to manage extreme pain and life-threatening complications.

Jason explained that having Sickle Cell disease is a lonely life. Each patient presents with different symptoms, requiring treatment to be adjusted accordingly. Jason is happy to have wonderful providers in Buffalo to manage his care.

Jason and and his colleague, Sickle Cell Warriors of Buffalo president Juanita McClain experienced their journey side-by-side while undergoing treatments at Children’s Hospital, and at specialized camps for children living with Sickle Cell. Their care when they were younger was overseen by social workers. When they “aged out” around 21 years of age, there was no one to guide their care. They came to realize how helpful their social workers were and how much they did for them. Thus, the idea for Sickle Cell Warriors of Buffalo was born.

Sickle Cell Warriors of Buffalo programs include Education to the Community, Transitions – a program to assist teens and parents in moving into adult medical care, Care Coordination – assisting adults in finding qualified practitioners, and Support Groups for Warriors and their families.

On Jason’s good days, he states that he accomplishes so much. He’s a Community Health Worker assisting others along their journey, while guiding the Transitions participants. But on other days, he is in pain and exhausted. However, he appreciates what goodness will come about and knows there is a light at the end of the tunnel.  Optimistic and passionate!

This Sickle Cell Awareness Month and year-round, you can help support Jason’s work and Sickle Cell patients just like him in your community, by making an appointment to roll up a sleeve and donate lifesaving blood. Visit RedCrossBlood.org, call 1-800-REDCROSS or download the free RedCross Blood Donor app to make an appointment nearest you.

 Written by: Ginny Scott, American Red Cross of WNY Communications Volunteer